-Robin celebrated her 58th Birthday this past Friday and we'll continue the celebrations this Saturday at Pier 500. Thanks to those who made it extra special for her this past weekend/week. Excited to see all those that can attend. We'll actually be able to start earlier - around 6 pm so feel free to come earlier if you prefer. It's not a surprise for her but she isn't aware how many people are invited. Feel free to say you'll be at her Birthday dinner on Saturday if you talk to her.
-While the gift of time and love is most important to Robin and her health, a few people have inquired about a gift for her Birthday. Again please don't feel obligated but I wanted to give a few people that asked the suggestions. Bottles of wine used to be the best but aren't so great now. Gift cards are perfect as she doesn't like to spend her money and if you take her for the activity/meal it's great. Pier 500, San Pedro, Olive and Vine, Mama Maria's, Pei Wei are some of her favorite meal places. She also likes pedicures at the place in Woodbury Lakes. Dunn Brothers is a favorite coffee spot now. And she likes going to the movies.
-We got her into the Mayo System! Thanks to all those with recommendations and referrals. She'll be seeing Dr. Brubach December 9thin Rochester. He specializes in behavioral variant FTD and we're hoping he can help treat some of the symptoms popping up and come up with a long term care strategy. I'll be back that week with her as it's 3-5 days of appointments yikes! She doesn't know about Mayo yet so please don't share that with her.
-Her delusions - they are getting worse and taking over her mind. Please be aware that she doesn't have mice in her condo and that their isn't a criminal in San Diego chasing me. She watches too much NCIS, CSI, etc... so if you're ever joining her for TV, choose something else. She does love College Football this season and loves going to the movies.
-If anyone is interested, Facebook has an amazing FTD group where people can share info and ask questions. I check on it daily to learn new things and prepare myself for what's to come. It's called the Association for Frontotemporal Dementia group.
Please continue to pray for her, and me... The holidays are going to be much different this year and I'm bracing myself for a tough time. Everyday I see her slipping away and I'm reminded that we are losing her all too soon.
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