the paperwork is unending

When this journey first started and it became more and more clear that Mom couldn't handle her finances and bills, I bought a simple filing system to get organized.

Shortly after, I became Financial and Healthcare Power of Attorney at age 26. I had to find out where all her finances stood - which banks, how to access them and not allow her to get money. What investments she had and real estate. Selling her Palm Springs property quickly so we had money. And then all the Doctors bills, health insurance changes, and access to medical records.

So I upgraded to ...

And eventually tax audits and penalties, a new living facility, new Doctors and insurance, Social Security Disability, applications for everything you can think of. Then all the receipts and filings for 7 years of taxes in case more audits happen. 

Let's just say Robin kept most everything which is good but now I have two of these and expanding to a third...

This disease is emotionally and physically draining but more so is the administrative tasks that go with caring for someone. In one year I have amassed more knowledge about taxes, finances, POAs, spend down, SSDI, insurance, HIPPA then many learn in a lifetime. I am by no means an expert and every piece of paperwork that shows up in the mail generally requires some research. Someday I will turn this knowledge into a career to help others in this position. I am thinking an online website full of resources along with 1-800 helplines, iPad apps, organization books, and one on one consulting. For now just trying to keep up.