-PPA (Primary Progressive Aphasia) - which refers to language and speech - was ruled out. There are 2 subtypes of FTD (PPA & Behaviorial Variant) - some people suffer from one, the other, or both. We thought Robin had a combo but Mayo is certain PPA isn't a concern. This is good and bad news - we don't have to worry too much about her speech deteriorating, it will more so be a loss for words than anything. The toughest part of PPA from my understanding is your loved one cannot communicate their needs whatsoever - Robin can certainly still tells us (loud and clear!) what she wants, maybe with different word choices than usual.
-Swallow Evaluation - Mayo Doctors performed a swallow evaluation and reported no major concerns, however I beg to differ. Swallowing issues are common among all types of dementia and something to watch for. Lately we've noticed Robin will forget to swallow when consuming liquids and take a large gulp or forgets to chew completely before swallowing. This is very concerning. She loves chips and salsa - two really bad choices. We'll monitor this more closely.
-Psychiatric medications - something that is a priority. Robin has delusions and fixations due to the deterioration of the "judgement section" of the brain. We are working with the Mayo Doctors to find a local psychiatrist that can help evaluate and monitor these changes.
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