Walk to Defeat ALS

We've all seen the Ice Bucket Challenge that swept the country this summer in response to raising awareness for ALS. I was inspired and touched as my Mom suffers from the disease and decided to take it one step further ... create a Team Robin for the ALS walk. 

Our team raised $1,070 and had 8 walkers the day of. $490,000 was raised by the Twin Cities walk - a huge record!

precious moments

This weekend we were so lucky to have Robin's oldest niece Sheila in town from Phoenix. She was Robin's favorite as a child and watched me grow up. Sheila and I have a unique connection in that we both moved far away from family at a young age and both lived in Europe. We share in those stories and also struggles of how difficult it is to be far from home. So grateful Sheila make it home for the weekend.

Saturday we spent the afternoon giving Robin a spa day! Bath including shaving her stick legs, a good facial, manicure and pedicure, lotion rub down and of course eyebrows.

Here are the moments captured...

yum protein shakes

Since Robin has struggled more and more with eating enough, I started making her protein shakes filled with healthy nutrients, fruits, proteins and fats. She absolutely loves them and eats until the cup is empty. So glad we found something she can enjoy!

Please spread the word about the Remarkable Robin Benefit!

4 shirts

At dinner tonight with Robin, I realized she was wearing not one, not two, but 4 shirts! It's slowly progressed to wearing an excess of shirts. While a year ago this might have made me frustrated and crazy, I now just realize "it is what it is" and laughed it off. Where and how the brain disconnected ... I don't know nor is it important. Find joy and humor in the small things!