follow the journey of Robin's battle with Frontal-Temporal Degeneration "FTD". Diagnosed May 29, 2013 ... this is fast-progressing disease that atrophies the judgement, decision-making, and speech areas of the brain. It shares a common mutation with Amyotrophic Lateral Sclerosis "ALS" or "Lou Gehrig's" which is now taking a toll on the muscles of the body causing weakness, imbalance, and slow uneasy movement.
Friday, June 20, 2014
Paula aka "Superwoman" and "Psuedo Mom"
She's back from a long winter vacation and just in time to give me relief from the daunting tasks and time it takes to caregive. Paula Kimbllin has been such a guiding light, sounding board for my crazy thoughts, go getter, always up for the challenge, type A, tough love Psuedo Mom. She stepped in from the moment I knew something was wrong with my Mom over a year ago. She is selfless in her love and time - Doctor appointments, legal papers, send a fax here, pick up this, what do you think of this option, can you look at this facility. Anything I need, I know Paula will do and do to my type A standards in Superwoman time. Beyond words blessed to have her in our lives!
Sunday, June 15, 2014
girls night out
This past Thursday we enjoyed dinner at Robin's favorite, Pier 500 in Hudson. So many great friends joined and Robin knew them all, had a big smile, ate good food, and was truly content with the friendships and love surrounding her. We plan on a lot more of these dinners this summer.
Roxanne & Robin
Mari Gifford & Robin
Hugs from Carol Palm
Robin, Paula, and Carol
MaryJo, Robin, Paula and Carol
Perfection! Roxanne, Robin, Paula and Trixie
Wednesday, June 4, 2014
guardian angel
Both Robin and I are blessed that Nick came into our lives at the perfect time. It's apparent in the love and smiles she shows him, that she approves. She lights up when he walks into the room, knowing he brings comfort and laughter.
Nick is selfless in giving his time, patience, love and words of wisdom. He is my rock and largely why I manage to get through the day to day emotions of this journey.
I captured these last night as we visited Robin.
Monday, June 2, 2014
Robin's other daughters visit
9 years ago in August I was blessed to move to San Diego for college. On move in day, I met the other 20 or so girls on my floor and instantly we connected. Several of us became so close that we all lived together the following year, abroad Junior year, and at the beach Senior year. Martha and Lynsie are two of the girls that continue to be my best friends and Robin's other daughters.
We have all traveled the world together, spent many nights enjoying wine, celebrating Birthdays, gambling in Vegas, dancing at country concerts, painting walls in our many apartments, and often snuggling.
Martha and Lynsie made the trek to Minnesota this weekend and we spent some good quality time with Robinator.
Gramma's 89th Birthday Party
This weekend we celebrated Gramma's 89th Birthday! Born June 1, 1925 - Donna Kavitz lives a beautiful life in Medford, Minnesota. With 5 children and lots of grandchildren, nieces, and nephews she is surrounded by her family. Robin is Donna's middle child and first daughter.
Robin, Ashley, Donna
video clip from the day
Ashley & Gramma
Robin, Linda, Camille, Gramma, Ashley, Lynsie
Robin loves Parker!
Robin and the boys
Robin and her buddy Cael
Robin walking with Martha
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